South Korea - Deinstitutionalization

It is a time of hope and change in South Korea, with renewed national leadership and strong advocacy to move away from institutional models. Led by Dr. Sook Kyung Park and her colleagues, Dr. Conroy was invited to assist via a presentation at the National Assembly on June 1. His writings and PowerPoint were translated and published in book form for the event.
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Outcomes of Leaving Sheltered Workshops

COA is committed to ask and answer the question "Are people better off after they leave sheltered workshops?" We've designed a research agenda toward that end, and are now seeking partners and funding to do the national level study that is needed
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How Big Should Group Homes Be? Latest Research Now Available

COA's recent summary of research on this crucial question is downloadable as a PowerPoint here: http://tinyurl.com/bwoasqs
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Welcome to The Center for Outcome Analysis

The Center for Outcome Analysis, Inc., (COA) is a non-profit firm founded in 1985 to perform evaluation, research, and demonstration projects in the human services and health care services. COA is founded on the principle that service agencies should be guided by the measurable individual quality of life outcomes of their services and supports. Many qualities of life are reliably measurable, and they should be measured. The ultimate unit of accountability for human services must become the quality of life of the people receiving supports.

Write to jconroycoa@gmail.com

The Quality of College Life Experience for Students with Intellectual Disabilities. We are working with Millersville University to track and evaluate the quality of life impacts of going to college. The effort is both short and long term, and is aimed at quality of life experiences including relationships & inclusion, choicemaking & independence, goals & achievements, work & income, and family perspectives. A recent presentation given at the AHEAD conference in Orlando is available upon request. The short, simple, reliable data collection instrument is available in Word right here at TPSID COA Instrument.

COA is undertaking a long term outcome research effort on workshop closure. Some states have ended sheltered workshops and sub-minimum 14(c) wage programs. But the evidence about the outcomes for individuals is inadequate. Read the COA White Paper on the need for definitive evidence here. We have a national websurvey of life after workshops online now, for people who once attended workshops, and now do not. Are their lives better, worse, or about the same? In what ways? The questions in the survey are shown in a PDF hereWorkshop Closures - Opinion Survey of Managers & Leaders 2016. Earlier this year we completed a Pilot Opinion Survey about the individual quality of life outcomes of workshop closure. It was NOT a nationally representative survey - nonetheless the trend of the results is clear and thought provoking. The Pilot report is 2016 Pilot Survey - Opinions about workshop closures.

The Evidence for Self-determination and Personal Budgeting (also called Individual Budgeting and Person-Centered Budgeting) - twenty years of scientific evidence - here.

Self-Determination - The Book. A compendium of the writings and studies that emerged from the Robert Wood Johnson Foundation's National Initiative on Self-Determination for People with Developmental Disabilities has been completed, and is available to order here: https://www.morebooks.de/store/gb/book/threshold-of-freedom/isbn/978-3-330-07710-2

Read a classic 1984 expose of conditions at an institution - Pennhurst - and the victory of Nicholas Romeo, whose case of systematic abuse went all the way to the Supreme Court.

Interested in short, one page, demonstrated reliable and valid instruments to measure choice, integration, productive activity, work & income, person-centered practices, and qualities of life? See them here.

Dr. Conroy is Co-President of the Pennhurst Memorial & Preservation Alliance, devoted to respectful memory of the human rights struggle of people with disabilities. Our work is centered on the historic tragedies and triumphs that unfolded at the Pennhurst institution. See our website here.

Outcomes of Holistic Practices - When people with intellectual & developmental disabilities who are challenged with problems in comfort, happiness, and behavior get involved in therapies like massage, Reiki, reflexology, acupressure, aromatherapy, breathing exercises, and related practices, do their lives improve? See a new study design and how we'll attempt to measure this scientifically here.

Mortality in Community Settings - A Case Study of Junk Science. See the history of the false "community mortality scare" of the past 20 years. The original proponents of this discredited concept refused to share their data and analyses with either the state or other researchers. See some of the 1997 correspondence about this dispute here. As we now know, the "mortality scare" studies were based entirely on a simple miscount of deaths in California institutions and community homes. View a short PowerPoint explaining how the research was discredited here.

The classic Pennhurst Longitudinal Study can be viewed and downloaded here.

For information about our rapid, efficient IRB review process, write to SDevlinCOA@gmail.com. 

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